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Prior Insight is our digital platform which

gathers rich data about autism as a

condition.

Every day, our staff members log data, via tablets,

about the young person they are working with - their

food intake, their activities, their behaviours and

more. On average, more than 10,000 data entries are

made every week.

Previously, such data was inputted via a paper-based

system which was time-consuming and limited in

terms of identifying patterns.

We use the data on both a day-to-day basis to assess

learning progress or aid with shift handovers, and on

a 'big' data, analytical level.

It is difficult for people with complex autism to

communicate how they are feeling or what they are

experiencing, making it difficult to understand why

behaviours, incidents or health needs occur.

With the capacity to interpret large amounts of

data more efficiently and effectively, highlighting

correlations and trends, Prior Insight helps us

to identify causes of behaviours and then find ways

to remedy these. It brings together teams from

across Prior's Court to pool expertise and experiences

more effectively, for the betterment of our young

people's lives.

How big data helped support one young person

to change their relationship with food

/priorscourt @PriorsCourt @priors_court Prior's Court Foundation

Meet Alfie

Alfie has had a diagnosis of

Autism Spectrum Disorder,

Attention Deficit Hyperactivity

Disorder and severe learning

difficulties. Alfie joined Prior's

Court in 2014 at the age of nine.

Alfie, who is now 17, is a very

sociable young man who actively

communicates with adults.

The problem

Following a sickness bug, Alfie's parents raised some

concerns as it seemed he had lost a slight bit of

weight. Concurrently, it was realised that Alfie had

begun to take extended periods of time and many

prompts from his Autism Practitioners when eating.

It appeared that following his sickness, Alfie had

developed an almost phobic response to food.

The solution

A multidisciplinary meeting was held in which a

robust protocol was developed for monitoring and

improving Alfie's relationship with food over the

following months.

A positive behaviour support approach sought to

help Alfie redress his relationship with food, meals

and the illness that he had experienced, to reestablish that eating

was good for him.

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