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Such work should not be limited to Africa. Further collection

of information is critical in other continents where resources

are limited, and a similar survey is ongoing in South and

Central America and soon in South Asia. In addition, regular

updates are needed to offer the most accurate information

and measure progresses over time.

Conclusion: A better understanding, and providing

help to families

The SIOP Global Mapping Programme has provided a much

better understanding of how children/adolescents with

cancer are treated across Africa. This is enabling collaboration

with WHO GICC and assisting SIOP and local stakeholders

including NGOs, to advocate for resources, equipment, and

specialized paediatric oncology health workforce where it is

needed most. The programme has highlighted that in many

African countries, chemotherapy is not continuously available

(9), which allows for local, regional, and international advocacy

by all stakeholders, including parents. This article has shown

what is needed, why it is needed and what is already working.

The SIOP Global Mapping Programme is not just an academic

exercise but is helping families across the continent identify

where their child may receive treatment, resources for support

during treatment and demonstrates the essential role played

by NGOs in supporting these families. As a parent of a child

who survived a childhood cancer, I confirm that the elements

of childhood cancer care addressed here were essential to

my daughter's recovery. All children/adolescents with cancer

and their families deserve optimal care no matter their

geography. n


The SIOP Global Mapping programme has only happened thanks

to the financial support of the Sanofi Espoir Foundation, and many

people giving up a lot of time over the past three years. A huge

thank you to the contributors to this paper and, Khumo Mhezo,

Scott Howard, Susanne Wollaert, Kathryn Burns.

Neil Ranasinghe, BA is the parent of a survivor of childhood

leukaemia. He volunteers for cancer organizations, contributing his

writing and editing expertise, his English degree, and his leadership

capabilities. Neil is a senior technical author at the London Stock


Neil is co-founder of a group of parents (PORT) that reviews

paediatric oncology clinical documentation for parents and


He is co-chair of the SIOP Global Health Education and Training

Working Group (POINTE) that helps LMIC clinicians find education

or training to help them treat children with cancer. Neil is a founder

member of the SIOP Global Mapping Programme.

Dr Joyce Balagadde Kambugu is a Consultant Peadiatric

Oncologist. She is the Director of Paediatrics at Uganda Cancer

Institute (UCI), the National referral cancer treatment centre in

Uganda. She is also the incoming Continental President of the

International Society of Peadiatric Oncology (SIOP Africa). With

more than 10 years' experience in the field Joyce is a passionate

advocate for childhood cancer in developing countries and believes

that every child with cancer deserves the best treatment possible

within the confines of available resources in their country. She is a

member of the National Cancer Control Secretariat and is involved

in development of the Paediatric National Control Plan

Lorna Renner is a consultant paediatrician with a specialization

in paediatric oncology, Head of the Paediatric Oncology Service

at the Korle Bu Teaching Hospital and Deputy Director of West

African Genetic Medicine Centre. She is Chairperson for the Faculty

of Child Health, Ghana College of Physicians and Surgeons. Dr

Renner is also a past President of the African Continental Branch

of the International Society for Paediatric Oncology (SIOP) and

country project lead for World Child Cancer, a UK based charity, in

Ghana. She is the recipient of several awards, most recently ASCO

Women Who Conquer Cancer International Mentorship Award


Professor Kathy Pritchard-Jones is Professor of Paediatric

Oncology, University College London Great Ormond Street

Institute of Child Health, London, UK. She leads clinical and

translational research in childhood kidney cancer and is a clinical

lead within Health Data Research UK's digital innovation hub for

cancer, DATA-CAN. She is President of the International Society of

Paediatric Oncology (SIOP) at a critical time to support the global

implementation of the WHO's challenge to double childhood

cancer survival rates in low- and middle-income countries from

~30% to 60% by 2030. She was medical director for an integrated

cancer system of healthcare providers serving a multi-ethnic

population of 3.5 million in North London and continues to

evaluate improvements to whole pathways of care.

Professor Davidson (MBChB, FCPaed, CMO, MPhil) is Head of

the Paediatric Haematology-Oncology Service at the Red Cross

War Memorial Children's Hospital and the University of Cape

Town. His clinical and research interests include paediatric brain

tumours, HIV-related cancers, genetic predisposition syndromes,

stem cell transplantation for primary immunodeficiency and

adapted therapy regimens for low- and middle-income settings.

He co-chairs the South African Paediatric Brain Tumour Workshop

and serves as the vice-president of the Society for NeuroOncology's

Sub-Saharan Africa branch. Having served as the co-chair of the

International Society of Paediatric Oncology's Global Health

Network (PODC) he now chairs the Advocacy committee.


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