60 CANCER CONTROL 2021
subsequently became the African Cancer Registry Network
(AFCRN). As part of the Global Initiative for Cancer Registry
Development in LMICs, the Network acts as a consortium to
provide a "regional hub" for cancer registries in sub-Saharan
Africa. The AFCRN is supporting or assisting the development
of 22 cancer registries in the region, including English-and
J Provision of training courses in cancer registration and the
use of CanReg 5.
J Participation in collaborative international research.
J Visits of INCTR consultants to the Kingdom of Saudi Arabia to
review cancer registration procedures and data quality and to
Uganda to offer advice on setting up a cancer registry.
J The treatment and characterization of acute Lymphoblastic
Leukemia in children, adolescents and young adults in India -
over 450 patients have been treated by four institutions.
J The treatment and characterization of Burkitt Lymphoma
- over 750 patients have been treated by seven centres in
Nigeria, Democratic Republic of Congo, Uganda, Kenya and
Tanzania. Survival is greater than 60% at 5 years.
J Understanding problems faced by parents of children with
Retinoblastoma before treatment - 435 parents interviewed
from institutions in 10 countries in Latin America, Asia and
J Situational analysis of breast cancer - 8,800 medical records
of women treated for breast cancer in four institutions in
Peru, Egypt, Pakistan and India.
J Studies carried out in Brazil, India, Pakistan and Turkey to
determine delays in diagnosing and treating nasopharyngeal
carcinoma and assess the role of consanguinity and familial
history in this cancer.
J A new initiative to characterize the lymphoproliferative
diseases in adults in Senegal with initiated in partnership with
Universities in Dakar.
J Development of a pathological and radiological review for
Brazilian patients with medulloblastoma in partnership with the
Brazilian Society of Paediatric Oncology.
J Accreditation Programme in the conduct of clinical trials in
institutions in Brazil.
J Educating school children about cancer in Nepal.
J Evidence-based development through preparation of
bibliographies of published literature from developing
countries relevant to breast cancer and selected cancers in
J Open Educational Resources for Cancer available online.
J Thematic workshops to discuss challenges in cancer control
in East Africa.
J Webinars for e-learning.
J Publication of five annual editions of Cancer Control from
2013, with specialist healthcare publisher, Global Health
Dynamics, looking at all aspects of cancer policy, prevention,
detection, treatment and palliation.
J Training and educating healthcare professionals - doctors,
nurses and social workers in the principles of palliative care
- in Brazil, Cameroon, Burkina Faso, Sénégal, Mali, Tanzania,
India and Nepal.
J Sensitization workshops for government officials and the
public in Brazil, Tanzania, India and Nepal.
J Development of a centre of excellence in palliative care for
both adults and children in Hyderabad, India.
J Lobbying governments to improve access to opioids for
terminally-ill cancer patients - Nepal and India.
J Establishment of twinning programmes with hospices in
Canada that support palliative care efforts in Nepal.
J Fostering the establishment of palliative care societies - in
Nepal and Pakistan.
J Promoting paediatric palliative care in Pakistan.
J Publishing a palliative care handbook describing the
management of a wide variety of symptoms in English,
Portuguese, French and Turkish.
J Development of the "Life at Your Doorstep" home care
programme offering extensive, 24/7 support for patients and
families struggling with advanced and terminal illness in the
cities of Hyderabad and Secunderabad.
J Organized training course for Francophone sub-Saharan
Africa in Uganda. This was led by HASPF and the Institute
of Hospice and Palliative care in Africa with expert input
by Hospice Africa Uganda and Alliance Mondial Contre le
J Palliative care workshops and training courses for
Francophone sub-Saharan Africa organized by AMCC in
partnership with AFSO were held in Uganda and Ivory Coast.
J Establishment of palliative care centres of reference and
training in sub-Saharan Francophone Africa (Mali, Cameroon,
J Canadian branch provides training in India for St Mary
Hospital in palliative care and fosters a collaborative approach
between palliative care and health care in Nepal.
J Development of palliative care programme in Rajasthan,
J Establishment of centres of reference for the treatment of
retinoblastoma - Mali and Democratic Republic of Congo.
J Mentoring of Indian paediatric oncologists in the