9
Welcome To WHITEHAVEN
Short Breaks for Children with Disabili�es
Linda Guthrie, Northern Health and Social Care Trust
Working together Excellence Openness & Honesty Compassion
Aim
To improve families' knowledge
and understanding of the processes
associated with short breaks for
children who a�end Whitehaven
from 30% to 80% by October 2019.
What are we doing and why?
• Facilita�ng focus groups to ensure families
knowledge & experiences help to improve the
service Whitehaven provides.
• A collabora�ve approach to devise a welcome
pack to inform families who use Whitehaven.
• Engaging with families to ensure they have the
knowledge they feel they require.
Plan
Do
Study
Act
Plan
Why is this important to
service users and carers?
• Recognising the poten�al Whitehaven Short Breaks
Unit has to support families who have a child with
a disability.
• To make Whitehaven more inclusive to families.
• LISTEN to service-users -
what is important to them?
Outcome measures
Focus Group Feedback
"The process was
very good &
encouraging"
"Important to
have parents input as
they have on-hand
experiences"
"I enjoyed spending
�me with parents &
listening to things from
their perspec�ves"
"All my worries
have been explained"
What else has it achieved?
Learning and next steps
• The value of co-produc�on & reflec�ve prac�ce.
• Embed service-user involvement & feedback into
the prac�ce & ethos of Whitehaven.
• Deliver Welcome Booklet to all families whose
children a�end Whitehaven.
• Design a 'child-friendly' Welcome Booklet using
makaton, symbols & photographs.
52%
Reduc�on
In Anxiety
Out of 12 families their average
anxiety levels would have reduced
by 52% had they received the
'Welcome to Whitehaven'
informa�on booklet prior to
their child a�ending Whitehaven
Median
Baseline
Improving in Families Level of Knowledge &
Understanding of the Whitehaven Process
% Improvement
120
100
80
60
40
20
0
L
K
J
I
H
G
F
E
D
C
B
A
D
C
B
A
D
C
B
A
L
K
J
I
H
G
F
E
D
C
B
A
Goal
Family Par�cipants
PDSA 1
Focus Group
PDSA 2
Dra� Informa�on Booklet
PDSA 3
Focus Group & changes
made to info Booklet
PDSA 4
Final dra� of into Booklet
Roll out to other families
Welcome
Informa�on
Pack
T/C from
key-worker
H/V from
key-worker
Easy read
Welcome
Pack
LAC - Parental
experiences
Feedback
Survey
Introduc�on
Leaflet
Newsle�er Parents
Forum
140
120
100
80
60
40
20
0
Service User Feedback
Count of events
100%
90%
80%
70%
60%
50%
40%
30%
20%
10%
0%